Company

Contact
Project scope
Categories
Communications Project management Fundraising Grant writingSkills
grant applications advocacy communication strategic planning grant writing stakeholder communications researchThe Sturge-Weber Foundation is seeking to enhance its capacity to secure funding and improve stakeholder communication in the field of rare diseases. This project aims to equip the foundation with well-researched and compelling grant applications, ensuring readiness when funding opportunities arise. Additionally, the project will involve updating and refining existing program documentation to better serve stakeholders, including patients, researchers, and healthcare professionals. The learners will also draft a comprehensive proposal for a new initiative that aligns with the foundation's strategic goals for the next three years. This project provides an opportunity for students to apply their knowledge of grant writing, research, and strategic planning in a real-world nonprofit setting, contributing to the foundation's mission of supporting those affected by rare diseases.
The project will result in several key deliverables: a set of researched and drafted grant applications ready for submission, updated program documentation that clearly communicates the foundation's initiatives and impact, and a detailed proposal for a new three-year project. These deliverables will be compiled into a comprehensive report, providing the foundation with actionable resources to enhance its funding and programmatic efforts.
Providing specialized knowledge in the project subject area, with industry context.
Sharing knowledge in specific technical skills, techniques, methodologies required for the project.
Direct involvement in project tasks, offering guidance, and demonstrating techniques.
Providing access to necessary tools, software, and resources required for project completion.
Scheduled check-ins to discuss progress, address challenges, and provide feedback.
Supported causes
The global challenges this project addresses, aligning with the United Nations Sustainable Development Goals (SDGs). Learn more about all 17 SDGs here.
About the company
The Sturge-Weber Foundation is a 501 (c) (3) non-profit organization with an ever-increasing worldwide membership and is funded by corporate and private donations, grants, and fundraising activities. The SWF was founded by Kirk and Karen Ball. They began searching for answers after their daughter, Kaelin, was diagnosed with Sturge-Weber syndrome at birth. The SWF was incorporated in the USA in 1987 as an International 501(c)(3) non-profit organization for patients, parents, professionals, and others concerned with Sturge-Weber syndrome (SWS). In 1992, the mission was expanded to also support and serve individuals with capillary vascular birthmarks, Klippel-Trenaunay (KT), and Port-Wine Birthmarks.